Little Girl Raises Over 90k To Help Find A Cure For Her Brother's Rare Disease

Causes |

A 6-year-old girl from Canada has raised over 90,000 to date to help find a cure for her brother. Na'ama Uzan started a lemonade stand when she was just 4 years old. She made headlines when her simple lemonade stand on her street raised $25,000 for the Foundation for Angelman Syndrome Therapeutics (FAST). Since then, she has become a little celebrity, and has continued in the efforts to help her brother, Nadav.

Na'ama found out her brother had Angelman Syndrome (AS) and wanted to do something about it right away. When asked why she started the lemonade stand in the first place she said, "Once I heard about it, I wanted to help-- because he's my brother, and I love him."

Angelman Syndrome affects one in 12,000-20,000 people. Her brother is unable to speak, and has to have assistance for daily living. Angelman Syndrome is a genetic disorder that can cause neurological and developmental disabilities. People with AS can have seizures and a slew of other issues. However, often times they are happy and smiling, and offer lots of hugs. Researchers are inching closer to a treatment with community support, which made Na'ama push harder for her brother. 

Since Na'ama's lemonade stand success that initially raised $25,000, she took off of a charity-spree. With help and support from her parents, the community and FAST, Na'ama went on to host other events to add on to the success. To date, Na'ama's efforts has brought in over $92,000 for FAST.

People like what Na'ama stands for - - a little girl who isn't so small after all. In fact, Ru Uzan, Na'ama's mother, reported that FAST used Na'ama's charitable donation to hire a post-doctoral researcher. "There's somebody working every day knowing that a little girl is standing on the corner calling out for lemonade and that is paying her salary," says Ru. Na'ama Uzan is an inspiration to us all. A true example of the possibilities which exist when you put your mind to it and your best foot forward. 

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Jessica Tripoli

Writer

Jessica begins each day with a joke that she shares with the team in order to build spirits up. Most agree that if it weren’t for Rebecca and her comical demeanor, the office just wouldn’t be the same. She brings that talent into her work by creating stories that bring laughter to people’s day.